Thursday, September 8, 2011

Muscular Dystrophy Perspectives: Brad


About a month ago I was invited by another Becker MD blogger, Dan, who thought it would be a great idea to swap questions with another person with Becker muscular dystrophy to help add some additional perspective and dive into some of the thoughts those of us with muscular dystrophy have. Below you will find my answers to a few questions Dan asked me related to living with Becker Muscular Dystrophy.

1. When you look at someone in a wheelchair, what do you see or how does it make you feel?

When I see someone in a wheelchair selfishly I think of myself, seeing some in a wheelchair to me represents something I may be in need of one day. My thoughts quickly turn to the cost associated with living life in a wheelchair, getting around in the winter, the costs involved in making a home 100% accessible, the Kitchen and the Bathroom being my biggest worry. So what I see when I look at someone in a wheelchair is change a new way of life, what I see is my future.

2. Pretend the universe split in two the moment you found out you had MD and there were now two of you living in parallel universes. The current you has muscular dystrophy and the other does not. What would the “you” that didn’t have MD be doing right now? Is there anything the real you has done/learned/experienced that your other “you” would never have?

If I didn’t have MD right now I would quite possibly be a very successful professional race car driver something I would have been able to peruse if I didn’t have Muscular Dystrophy. Maybe I would have been able to become many different things without MD but I wouldn’t be the same person I am today.

The real me has done some amazing things but even without MD I believe I would have perused the same dreams. And I really hope that I would have gone through the same experiences and learned all the same lessons the main ones being caring for others and the importance of family and friends.

3. What’s a feeling or worry you have that you think you might never “get over” and why not?

These days I tend to worry about the day when I can no longer climb stairs and what effect it will have on my ability to visit with family and friends. In recent years stairs have really become my worst enemy since they create all sorts of issues for me especially when I am invited over to someone`s home. These days many homes have finish basements and that’s where most people like to spend their time and this creates a major problem for me. I hate the fact that my issue with stairs is starting to limit my ability to socialize. This is an issue that I worry about all the time and know I will never get over this issue especially if it keeps me from spending my time with friends and family.

4. Do you have any other in-person (i.e. not online) friends with disabilities — MD or otherwise? If so, what have you learned from them?

I do have a people in my life who I know who also have disabilities. What I have learned from them is that it is good to try and enjoy your life and that a great sense of humor goes a long way.

5. Pretend you could be a member of any TV family (e.g. Cosbys, Simpsons, etc) which would you want to be a member of and why?

I would want to be a member of the Duke Family mainly Bo Duke from 80`s TV show the Dukes of Hazzard since it looks like it would have been a lot of fun driving the General Lee.




To visit Dan's blog please go to: http://musculardystrophybook.com/


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2 comments:

  1. Don't worry about the stirs,Brad. The people that really matter will come to you. I have limb girdle m.d. and stopped doing stairs about 20 years ago. We had a beautiful home, on a mountain, in the country and had to sell it because of the stairs. Fortunately, moving to a bungalow in town opened many doors for me that I never knew existed. Much of our success in life has to do with our attitude and how we choose to deal with circumstances. I choose to be happy each morning that I wake. :O)

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  2. Hi Brad, I have the same concerns you do. I find myself avoiding places with stairs, just because they are difficult to climb. Some are places I want to go to that are not that handicap friendly. I still see a wheelchair as something in my future and could sometimes benefit from one to get around. It is a little difficult thinking of giving up being upright and mobile. I know it will be a transition for me and it is just something I will have to deal with when that time comes. I think the biggest thing is finding/making a place more accessible to live in when that time comes. But, I think you are probably like me and other people with MD...we find a way to adapt and learn how to do things differently.

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